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Patient-Reported Treatment Outcomes in ME/CFS and Long COVID

LongCovidPharmD: “Yesterday, a preprint including data analysis of my TREATME survey results was released. For those who haven’t heard, this survey collected pertinent information regarding 140+ different medications, supplements, and non-drug interventions from nearly 4,000 Long COVID and ME/CFS patients. For those who participated in the survey, THANK YOU! I hope the paper emphasizes the utility of certain treatments in ME/CFS and Long COVID and helps bring confidence to healthcare professionals who have little experience treating these conditions and who might previously have hesitated to think outside the box or experiment with off-label interventions. Please note: I will be sharing additional data and analysis from the survey results here on Substack. This will include data on how specific symptoms were affected by various treatments where applicable. Please keep an eye out for further articles published here in the coming days/weeks! My next analysis will cover METFORMIN and RAPAMYCIN. Rapamycin is not included in the spreadsheet because the sample size was under 20. However, I still want to share the data here, especially in light of the upcoming Long COVID trial investigating the use of low-dose rapamycin.”

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