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Coalition for Patient Privacy: Resources for Consumers

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Coalition for Patient Privacy: “Our mission is to ensure that Americans control all access to their health records.”

  • “National Committee on Vital and Health Statistics report, Enhanced Protections for Uses of Health Data: A Stewardship Framework for ‘Secondary Uses’ of Electronically Collected and Transmitted Health Data. The report recommends that Americans have NO control over access to their electronic health information.”
  • Patient Privacy Toolkit: Privacy Instructions: Give to all Providers; How to Talk to Your Doctor; Your Health Privacy Rights; Health Privacy Complaint Form to HHS
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