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Building public trust in uses of Health Insurance Portability and Accountability Act de-identified data

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Building public trust in uses of Health Insurance – Portability and Accountability Act de-identified data, Deven McGraw, Center for Democracy & Technology

  • “The aim of this paper is to summarize concerns with the de-identification standard and methodologies established under the Health Insurance Portability and Accountability Act (HIPAA) regulations, and report some potential policies to address those concerns that were discussed at a recent workshop attended by industry, consumer, academic and research stakeholders. The target audience includes researchers, industry stakeholders, policy makers and consumer advocates concerned about preserving the ability to use HIPAA de-identified data for a range of important secondary uses.”
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